My Daughter’s Health Story Part 3

If you are just beginning this story, click here to start from the beginning and learn about my daughter’s health.  So we left off where my daughter had gotten this small cut on her nose (in the cleft where the nose meets the cheek).  In a matter of weeks it had turned hard and bulbous.  We were thinking it might go away on its own but it just seemed to be getting bigger and bigger.  We were giving it until the end of the year to hopefully go away, but it didn’t.  So we scheduled an appointment with an otolaryngolist (ear, nose and throat doctor) who specialized in plastic surgery.

day of surgery

After further inspection, he felt Kayla had a keloid on her nose, and his advice to us was to have it surgically removed and then to put a few stitches in that area to help it close up.  A keloid is basically an overgrowth of skin which forms a firm, rubbery type scar.  So we scheduled the surgery for February.  Meanwhile, Kayla was starting to get self-conscious because a lot of people would ask her about it.  The day of surgery arrived.  Kayla seemed to be ready to go, while mom, on the other hand, was anxious about seeing her daughter go under anesthetics and have surgery.  All of the nurses at the hospital doted on Kayla with coloring books and puzzles, and she seemed at ease.

hemangioma surgery

During surgery the ENT came out and asked if it was okay for him to remove the old tubes we had put in Kayla’s ears since they were just hanging out in the ear canal.  He also suggested putting a new pair of tubes in because her ears were both infected.  What in the world?  So I gave him permission to do this in addition to the removal of the keloid. 

After surgery he came in and said he thought it was a hemangioma (swelling of blood vessels that forms on the outside of skin) and not a keloid because of all the blood during surgery.  I listened but didn’t think much about it since it was removed.

Kayla was a champ though.  She was very upset after surgery, but it wasn’t anything a hospital slurpee and a stuffed teddy bear didn’t remedy (evidence of the slurpee on her lips below).  Here you can see the growth was removed and replaced with a couple of stitches. 

keloid surgery

The surgery seemed to be a success, and after a nap, she seemed back to her happy little self.  We did the best we could to take care of the incision according to doctor’s instructions, and a week later my husband took Kayla back to get the stitches removed. (Momma couldn’t handle anymore.) The visit wasn’t without a little drama, tears, and fears, but the stitches were removed.

The incision area itched as it was healing, and we were constantly getting Kayla to wash her hands and not touch that area.  We put Neosporin on it to help moisturize the skin so it wouldn’t itch.  We also washed it according to the doctor’s orders and tried to keep it covered during the day so Kayla wouldn’t touch it, but three weeks and $2200 out-of-pocket later it was back and bigger than ever. 

image

So we marched back into the ENT’s office, and he concluded it was indeed a keloid and not a hemangioma since it had come back.  He suggested the same surgery with the addition of having her come in weekly for four to six weeks to get steroid injections into the area to ensure it wouldn’t come back.  WHAT?  You want to put my daughter under the knife again and then put her under anesthetics five times in a six-week period and inject steroids into her face?  There was no way I was subjecting her to that.

Desperate, discouraged, frustrated, and completely at a loss as to what I should do next I decided to make an appointment with a specialist at Riley’s Children’s Hospital in Indianapolis.  Of course, I had to wait a month to get in.  Meanwhile the “keloid” wasn’t getting any better and seemed to be bigger and more sensitive than before surgery. 

During this waiting game, I had a conversation with a friend about something to try in the meantime…

Click here to read part 4

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Comments

  1. Poor girl. Poor momma. There is nothing worse then watching our babies suffer.

  2. OH Beckie, I am so sorry to hear that you and your poor sweet baby girl have been going through this! Yes, I hang my head because I’ve been remiss… so much has gone on here that I’ve pulled back into a shell and cut those off that I called friends. I am so, so sorry! Know that I’m praying for you all!

  3. Your ordeal with your daughter, just confirms my feelings that we are overusing antibiotics and even antibacterial products. I am only using regular soap in my home now. We need to be in contact with some bacteria I think to develop an immunity. With the use of antibiotics and anti bacterial products, we are losing our healthy bacteria that we naturally have in our bodies.

  4. That is insanity. A surgery that didn’t work?? So glad you’re getting a second opinion! Your poor sweet girl!

  5. Sydney Bishop says:

    I am personally prone to keliods , I had the surgery done as well and only needed one to two stitches, I have only had to get two injection of steroids in the past three years and so far it has been pretty good. Mind you my keliod was on my ear from a piercing and it was fairly larger and very, very hard but I would recommend going to a plastic surgeon the your pediatrician would recommend.

  6. kristin marvin says:

    Oh Beckie. I am so glad to hear you called in for a second opinion. And to be thrown all the info. while she was in surgery–tubes replaced, ear infection, keloid–not keloid–I have been through some medical issues with my older daughter (when she was very young and older) and I understand the fear, frustration, educating ourselves, faith, hope…that comes along with it. Look forward to hearing the final outcome and what ykour friend said to try!

  7. Glad you are seeking a second opinion. I’m in hope it’ll be from a dermatologist. Wondering what the pathology report indicated the excised lesion was? Cutaneous horn?

  8. Poor little angel! I’m on pins and needles over here. I hope you found a non-surgical solution!!!

  9. Wow. Poor little thing! What an ordeal– I’m so sorry you all had to go through that. I’m hoping they’ve figured it out and she’s doing much better now!

    ~Abby =)

  10. what a precious little girl. I am so sorry for you and your family to go through this. will be glad to hear about a successful solution.

  11. Beckie, you commented that this is minor compared to some health issues others are faced with, and while that is true, it is still so terrifying no matter how small when it comes to our children. We as parents want so badly to make the right decisions for them. I am also glad you are seeking another opinion. My son has also experienced some ongoing minor health issues, so I feel your pain. You and Kayla will be in my prayers.

  12. What an absolutely beautiful girl you have!!! Best wishes for finding the treatment for her. Very disheartening and my heart breaks for you all. She is in my prayers!

  13. Oh my – such a sweetie, so sorry you’re having a trying time with this issue. She is so cute! Stay strong and sending positive thoughts to you and your family!

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